Hello @hotfooted -- Thanks for the private message. Your question "why is there no specific Group Category for Erythromelalgia? I know Mayo Clinic has doctors and treatments for this condition, so I am puzzled" is similar to questions others might have been thinking so I wanted to address it here.
There is discussion on Connect for Erythromelalgia that I think you are familiar with which is the discussion that I am posting your question in here:
> Groups > Autoimmune Diseases > Erythromelalgia
-- https://connect.mayoclinic.org/discussion/erythromelalgia/
I'm tagging Colleen @colleenyoung our director in case she wants to add any thoughts or corrections. New groups are added to Connect based on activity and need. Since I joined in 2016 Connect has made a lot of significant improvements and added groups and discussions as the need arises.
As you mentioned in your question, Mayo Clinic has doctors and treatments for the condition. Our moderator @kanaazpereira shared a good description that talks about what Mayo Clinic offers earlier in this discussion. Here is a link to Kanaaz's post: https://connect.mayoclinic.org/discussion/erythromelalgia/
I would also like to mention a feature on Connect that most members probably are not familiar with - the search function. There is a good discussion on how to use search to find conditions, discussions and more here:
> Groups > Just Want to Talk > Search - It can help you!
-- https://connect.mayoclinic.org/discussion/search-it-can-help-you/
John
@johnbishop Hello again John.. I have not been online with you for a few years.. but am now back with my "progress (or lack of) report"..I am still troubled with hot burning feet sometimes during the night.. but it is now neuropathy with numbness..My doctor at that time diagnosed me with diabetes and prescribed Metformin, which I still take daily.. My AC1 has never been over 6 since that time! After all this time, I don't believe I ever had diabetes..
In reading about causes of neuropathy I across a reference to Charcot Marie Tooth syndrome as a gene mutation that does cause neuropathy.. I hope you can m
AAAAJOHN.. i GIVE UP.... MY LEFT HQND ON'T BEHve noeYAS...
JUS TOSS GHIS PLEASEEEEEEEE..........
HOTFOOTF