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Anyone out there with Erythromelalgia?

Autoimmune Diseases | Last Active: May 12 7:45am | Replies (298)

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@aluck

Hi hotfoot, I too have erythromelelagia it has changed my life actually turned it upside down no standing for over 20 minutes, no hot showers, no swimming I. warm pools, I spend most of my days with my feet propped up fans going day and night and sometimes run cold water in the tub and soak my feet until the burning stops. I take gabapentin, cymbalta and propananol 3x daily, if I miss one does of propranolol I'm up in the middle of the night soaking my feet. Horrible disease.

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Replies to "Hi hotfoot, I too have erythromelelagia it has changed my life actually turned it upside down..."

Hi aluck.. Recently I was finally diagnosed with Diabetes type 2.. I hope you will refer to my most recent posts because I had a wonderful experience while visiting the Nutritionist for the first time.. My feet were purple and flaring dreadfully.. When she saw them like that, she immediately said there is something that many folks swear by an easily available herbal treatment.. It's available from Walmart, Amazon, even on Ebay.. "Frankincense and Myrrh NEUROPATHY"... It comes in a liquid "drops" form and you add a few drops to some hand or face cream, then spread it wherever your pain is.. She used 6 drops mixed with a tablespoon of hand lotion for me... The effect was instant! The flare began to fade and the pain began subsiding.. I ordered some from Amazon Prime and it arrives tomorrow.. I will be posting about how it affects me from now on... Hoping for more of the miraculous relief that I experienced that day! Be aware tho, some folks have responded that it did not work for the particular type of neuropathy/pain... Blessings..