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DiscussionAnyone out there with Erythromelalgia?
Autoimmune Diseases | Last Active: May 12 7:45am | Replies (298)Comment receiving replies
Replies to "Hello, I noticed that you mentioned itching. Some of your symptoms sound like what I went..."
@cinnamon215
Thank you for the suggestion. My regular blood tests all come back surprisingly normal. I agree with the diagnosis of EM for me though. I have textbook symptoms such as the flares (redness, swelling, heat) caused by increased activity, salty or sugary foods, exhaustion, sitting too long, high heat or humidity, etc. I forgot to mention in my original post that I also use a pain cream with imipramine, cyclobenzaprine, and lidocaine applied directly to flares. It helps, but does not much reduce the occurrence of flares.
The Fibromyalgia, Migraines, and my Multiple Chemical Sensitivities actually all fall under the Central Sensitization umbrella. Other disorders such as Restless Leg Syndrome, Chronic Fatigue Syndrome, etc. are in this same category. I was told that once a person develops one such issue, then they are at risk for developing other disorders falling under this umbrella. Try googling it for more details, but researchers point to minute damage to the pain receptors in the spinal nerves, as causation.
Anyway, the pain of Ocular Migraines is certainly taxing and worrying. The first time it happened, I thought one of my retinas was detaching due to the showers of white sparks I kept seeing! Luckily I still have my eyesight... I hope you can find some relief from the Migraines.