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Anyone out there with Erythromelalgia?

Autoimmune Diseases | Last Active: Mar 28 9:59pm | Replies (283)

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@hotfooted

No, I haven't seen a specialist.. but have discussed my problems with my osteopath. He prescribed gabapentin for me, but I developed bad itching and had to stop that med. Now I'm only taking Cymbalta and Lisinopril. Cool my feet by spraying with cool water in shower mostly. For some reason I have been losing weight over the past couple of months and that may have helped some, too. The neuropathy has moved up my legs, past my knees and up to my groin. I am depressed more, and frightened..

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Replies to "No, I haven't seen a specialist.. but have discussed my problems with my osteopath. He prescribed..."

@hotfooted Hae you sen a specialist yet?I think its in you best ibtrest to see a sugestion of a endocinologist or neurologist Let us know how your doing ter seing. Dr

Hi @hotfooted, I'm not sure if it's an option for you but Mayo Clinic Rochester has an Erythromelalgia Clinic that may be able help you.

Erythromelalgia Clinic in Minnesota
-- https://www.mayoclinic.org/departments-centers/erythromelalgia-clinic-in-minnesota/overview/ovc-20421220