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Anyone out there with Erythromelalgia?

Autoimmune Diseases | Last Active: Mar 28 9:59pm | Replies (283)

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Thank you for moving my post to autoimmune issues.. As for diagnosis of Erythromelalgia, I had talked with my doctor about the problem, but until I had an actual big red flare in his office I don't think it was taken seriously.. Now he has a picture of my feet in a file and it's listed as another of my health issues. As for treatment, I was already on Cymbalta for depression and have been on antidepressants for years and was also taking Magnesium for constipation. Then we added Gabapentin and it seemed to help my burning feet in the beginning. But a couple of months ago I started itching all over so badly, so I did what I normally do and went on a search for the cause of that. Finally discovered that itching was sometimes a side effect of taking Gabapentin and Magnesium together. So I stopped both. I have lost weight, almost 10 lbs now and am unable to eat more than a few bites of food every few hours, altho when hunger hits me I MUST eat something fast. Just feel that urgent need and start to feel shaky. I am tired and weak and in neuropathic pain up through my thighs now. My husband would like to have his wife back and I don't blame him..

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Replies to "Thank you for moving my post to autoimmune issues.. As for diagnosis of Erythromelalgia, I had..."

Hello, I noticed that you mentioned itching. Some of your symptoms sound like what I went through for the last 4 years. It turns out that my severe and ongoing itching was caused by my liver and I was diagnosed with Primary Biliary Cholangitis with Autoimmune Hepatitis overlap. Have you had your liver enzymes and liver function tested? It wouldn't hurt to rule out that problem with a simple blood test. Also, I wanted to ask you about your ocular migraines!!!!! I couldn't believe my eyes when I read that you were diagnosed with that. I was too!!! But the ophthalmologist that told me just said that's what it was and that was it! Were you prescribed anything for it? Did the doctor tell you that it was autoimmune as well? I have been so worried about this. Thank you for sharing.