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Anyone out there with Erythromelalgia?

Autoimmune Diseases | Last Active: Mar 28 9:59pm | Replies (283)

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@colleenyoung

Hi @hotfooted, I add my welcome. As @johnbishop recommended, I have moved your message to this existing discussion about Erythromelalgia in the Autoimmune Diseases group so that you can meet others like @katelynntiff @summershaddow @txbren @jcmoffatt.

You may also be interested in this discussion
– Burning Feet syndrome https://connect.mayoclinic.org/discussion/burning-feet-syndrome/

Hotfooted, have you had any treatment or seen a specialist?

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Replies to "Hi @hotfooted, I add my welcome. As @johnbishop recommended, I have moved your message to this..."

No, I haven't seen a specialist.. but have discussed my problems with my osteopath. He prescribed gabapentin for me, but I developed bad itching and had to stop that med. Now I'm only taking Cymbalta and Lisinopril. Cool my feet by spraying with cool water in shower mostly. For some reason I have been losing weight over the past couple of months and that may have helped some, too. The neuropathy has moved up my legs, past my knees and up to my groin. I am depressed more, and frightened..