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Kidney failure and AL amyloidos

Kidney & Bladder | Last Active: Oct 6, 2018 | Replies (9)
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@lisalucier

Hi, @devineone - sorry to hear your husband's breathing, energy and fluid retention are really bad.

I'd like to tag some of the members who've talked about kidney failure/dialysis to see if they may also have dealt with cardiac amyloidosis or known of this in others, like @gingerw @judyth @jolinda @susanjc. Hoping they may have some input on treatment for fluid retention.

How is he doing today, @devineone?

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Replies to "Hi, @devineone - sorry to hear your husband's breathing, energy and fluid retention are really bad...."
devineone | @devineone | Aug 26, 2018

Thank you so much. He is very tired and now constipated, probably due to the chemo drugs and of course cannot drink a lot of liquid due to the dialysis...we are trying BeneFiber today as you do not have to have 8oz of liquid, you can dissolve in 4oz, and you can mix in applesauce or grits as it has no taste and dissolves pretty quickly and not lumpy. As far as fluid tomorrow at dialysis he will ask if they can lengthen the time. Fingers crossed..

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