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onana (@onana)

about to begin treatment for MAC

MAC & Bronchiectasis | Last Active: Nov 3, 2018 | Replies (24)

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@onana

@jkiemen

@onana Hi Jo Ann! I'm beginning my treatment today with the same 3 drugs you said you used when you responded to me on August 20, 2018. Thank you so much for that response. I am taking your advice about how to time the drugs. I'll let you know how it goes. I have to admit that reading about the nasty side effects from some folks on the forum has me a little scared, but your post encourages me to go ahead and give it my best shot. Thanks again. Olivia in California

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Replies to "@jkiemen @onana Hi Jo Ann! I'm beginning my treatment today with the same 3 drugs you..."

@onana I know. We have to remember to make sure we don't make people too scared to try the only currently recommended treatment. I was really scared and at the was started on rifabutin first which gave me side effects of muscle pain and flu like syndrome. They changed me to rifampin and that when better. It has been tolerable so far. Not every one gets all the side effects.

Hi there. I've been on the same mess of medicines that you are. How and what time of day do you take and/or space your doses out? I'm looking for suggestions to maybe change mine to. Thanks in advance.