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Hormone Replacement Therapy after several misdiagnoses

Autoimmune Diseases | Last Active: Aug 22, 2018 | Replies (7)
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@woolfklynn

@johnbishop @hopeful33250 Thank you so much for your reply. My dream and hope would be to be able to be seen by doctors/specialists at Mayo. I am visiting my son in AZ next week and was going to see about a visit! My rheum dr is weening me off the pred, but this past week I feel as though the PMR symptoms are creeping back. The tired legs, wrist aches, hips, feet, extreme fatigue is evident. Gets pretty exhausting. Thank you again.

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John, Volunteer Mentor | @johnbishop | Aug 18, 2018

Hi @woolfklynn -- That would be great if you can make an appointment at the Mayo Clinic Arizona Campus. It might not hurt to call them before you get there to see about getting an appointment. Here is a video patient guide that may be helpful:

Introduction - Mayo Clinic Patient Video Guide - Arizona - YouTube
-- https://www.youtube.com/watch?v=9MkA4E-gB8I

Mayo Clinic in Arizona
480-301-8484
8 a.m. to 5 p.m. Mountain Standard Time, Monday through Friday

Also, tapering off of the prednisone is standard treatment but we are all different as to how long it take to get off of prednisone. The goal is to taper off gradually until you don't feel the pain anymore when you stop taking it. I've had two occurrences of PMR. The first time took me 3 years to get off and the last six months was going back and forth between 1 mg and 1/2 mg daily dose of prednisone until I was finally OK when I stopped taking it. The second time I was able to taper off in about 1-1/2 years. There are some good discussions on PMR that you might want to read through and post any questions you might have:

Groups > Autoimmune Diseases > PMR Anyone?
-- https://connect.mayoclinic.org/discussion/pmr-anyone/

Groups > Autoimmune Diseases > Polymyalgia rheumatica
-- https://connect.mayoclinic.org/discussion/poly-myalgia-rheumatica/

Can you let us know if you were able to get an appointment and how things went?

Hope you find some answers.

John

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