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Dealing with "muscular skeletal breakdown", colitis, depression, etc
Chronic Pain | Last Active: Aug 18, 2018 | Replies (23)Comment receiving replies
Please let us know if you are, or are not able to get an appointment at the Mayo Hospital in Phoenix. I'm thinking about you and your son this weekend and I hope you are able to secure an appointment soon.
- Is he finding any relief at this point?
- Has he tried the peppermint capsules or BRAT diet and if so, have they helped?
- Does your son know you are searching for help on Mayo Connect?
- Is there a reason he doesn't write about his situation here?
I'm asking the questions above because I know my husband and other males in my family are highly resistant to my trying to help them or recommend they seek medical attention for their problems. I also know that sometimes it's too difficult to write and ask for help. I'm hoping your son is listening to your recommendations and will continue to participate in his recovery. I concur with Gman007 about your son seeking emotional counseling. I have been through counseling and now take an antidepressant that allows me to function in a healthy way. My fears of asking for help when I was 25 years old were huge. He will probably need encouragement that he's not "crazy," but is probably depressed due to his pain and worrying about the unknown diagnosis.
I hope your son's doctors will supply his records to the Mayo Hospital, and if not, that you are able to get an appointment for him. There is an answer out there, so keep pushing for it. You're a good, loving and strong mother; your son is fortunate to have you in his life.
Gail
Volunteer Mentor
Replies to "@tammy64 Please let us know if you are, or are not able to get an appointment..."
I really appreciate everyone's input and good advice. He FINALLY was able to get an appointment at Mayo but not until October. It's a start. To answer some of your questions, Gail, he does have relief at times. He does a lot of physical therapy on his own and meditates. He is taking a lot of 'natural' anti-oxidants, anti-inflammatories, and Omegas, etc. He has over the years been diagnosed with so many different things that I sometimes think these doctors are just grasping for anything. He has not had success with the BRAT diet especially since his food sensitivities include bananas, white rice, and bread (although he can to gluten-free).. his diet is a true struggle. He always ate so 'clean' and healthy but find out later he had strong sensitivities to the chicken and veggies etc that he was eating. I promise it's like a dog chasing it's tail... danged if you do and danged if you don't.
He does know I'm reaching out for help and is thankful for my intervention. One of the many aches and pains he has is in his hands so to write and/or type causes a lot more pain so he is not wanting to do it himself. This is a 23-year old man that is so frustrated with his aches and pains and the lack of help he is getting. For example, one diet he was to follow for 6-weeks told him not to eat: apples, bananas, barley, bean, beef, beer, carrots, celery, cheese, chicken, egg, lemon, lettuce, milk, oat, peas, peanuts, potato, tomato, tuna, turkey, wheat, whey, yeast..... plus more (you get the point) WHAT was he suppose to eat? How do you pack food for work for the day? No answers. I love to cook and try new things but I couldn't even figure out simple things for him to take to work and be satiated. Not to mention other diets eliminated what the first one allowed.
My son is frustrated and has done so much on his own to get answers to all the things going on in his body. I am proud that he has taken charge but also frustrated for him not finding any true answers. He has gone to a psychiatrist for help to only be prescribed medication that he is learning is NOT what he needs and is getting off of them now... just one more misdiagnosis.... FRUSTRATING.
I appreciate your encouragement and understanding what he is going through. I am happy to say he is at least telling me everything and when he gets at that 'low' point he is now calling me and we are able to talk through it. Depressed or frustrated? One needs meds the other? I think it needs time and a good doctor (or team of) to really figure this out. I am hopeful and everyone here has been wonderful.. Thank you!
@tammy64 wow poor guy hang in there till Oct What is your sons name I,ll put him on our prayer list ?
Thank you for your helping me to understand your son's situation better. I'm so sorry that he and you are going through this experience. I can understand his frustration with the diets and different ways his physicians have used to try to narrow down his problems. Obviously, it hasn't worked. I also relate as a mother of an adult son who has had physical and mental problems. It's so hard to see your child in pain and suffering; I wanted to take his place but of course could not.
I urge you to keep trying to get your appointment moved up. Have you supplied Mayo with all of his medical records yet? If not, I recommend doing so, and after that seeing if they can move him to a sooner appointment. It has happened for others at times. I'm happy your son has such an active advocate in you. It sounds like you have a great trusting relationship. That is a comfort for him I'm sure.
I'm holding you in peace and love during your wait.
Gail
Volunteer Mentor
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@tammy64 Yes as gailb said please let us know if your son gets help he,s to young to have these problems but its hard to tell a young person I know have a son at that age couldn't tell him anything.Praying for you .