← Return to Tingling in arms and legs - will this get worse? Can I still function?

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@johnbishop

Hello @candicegaona381, welcome to Mayo Clinic Connect. I also have idiopathic small fiber PN but I don't have any pain with it. I only have numbness and tingling. I have no medical training or background but when talking with my doctor team and confirmed by the Mayo neurologist that diagnosed me I found out that the drugs given for neuropathy only address the pain by blocking the signals in the brain. The neurologist told me there are no creams, salves, topicals, etc. that will help with the numbness. That's when I started looking into alternative treatments for neuropathy. I take supplements I found in a closed Facebook group that also has a website - http://solutions2pnpd.com/ and while it doesn't cure PN it does address the symptoms of neuropathy. I don't know if it will work for you but it definitely has helped me. You can read my PN story in an earlier post here:
https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985
Hoping you find some answers soon.

John

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Replies to "Hello @candicegaona381, welcome to Mayo Clinic Connect. I also have idiopathic small fiber PN but I..."

John,
I'm hoping for answers too, I'm flustered and disappointed but I'm stubborn and can't give up on behalf of my family. But it's depressing. I am happy to be able to share my experiences and learn from others experiences as well. I am nervous for the future granted I'm in my 30's and it's progression. Yet I'm greatful that I still have some abilities to care for my family. Doing my little girls hair before school is one of the simplest yet biggest drlepressions as their mother with numb, tingling hands that literally ache, throb and shake.
Thank you
Candice