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Share Your Brain Tumor type & Years since Diagnosis
Brain Tumor | Last Active: 1 day ago | Replies (89)Comment receiving replies
I was diagnosed with a hemangiopericytoma in June 2017. I had surgery in July 2017 and they removed as much of the tumor as they could. In November/December I received 6 weeks of proton beam radiation. My first follow up MRI was in April 2018 and there was no new growth. My next MRI will be in October.
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@justk
My husband had a hemangiopericytoma 40 years ago which invaded nasal bone & surrounding tissue. He had multiple surgeries until clean bone & skin margins could be obtained. I am RN so was able to take him home in between pathology days. He did such a great job with his skin flap. I had to slowly take him out to mall to show him no one was staring at him. After first surgery I could tell was returning ( mid diagnosed). So took him elsewhere. I believe he had 4 gig of radiation3xweek for about 2 months . We are Blessed it has never returned. We declined bone graft surgery. I was frightened the skin flap wound not heal again at the time. He hasn’t had a reoccuranceWe were blessed with a good MD & prayers as we were so much younger. Now at 70’s I am dealing with a missed inoperable skull based tumor. Will write a seperate post after holiday!