← Return to New Diagnosis of Polymyalgia Rheumatica (Husband)

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@dreamer38

@noosat1...I too am fairly new to PMR...diagnosed last Oct. been on Prednisone, starting at 20 mgms, then on 30, now down to 10. Could you tell me some of the ‘unpleasant’ things that were/are happening to your body. I have fallen twice and now my balance is ‘the pits’. Can handle the hair loss, the weight gain, personality change, etc., but seem to be in a brain ‘fog’ most of the time! I have glaucoma as well and my vision has deteriorated. All in all, I guess I just want to know if I’m on the right track. John has been very helpful, but I have not been back to him lately. Sorry, John. Will try to do better!!

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Replies to "@noosat1...I too am fairly new to PMR...diagnosed last Oct. been on Prednisone, starting at 20 mgms,..."

I also have glaucoma or high eye pressure, that is one of the reasons I want to get off prednisone.. My balance was very shaky, some better now. I am not sure whether it was the disease or the prednisone. The less medicine I had to take the better I felt. The same with that foggy feeling. I have not had weight gain, but not lost the 10lb that I know would help me feel better. I do concentrate on healthy diet, lots of organic vegetables and fruit, preferably heirloom. I eat very little meat, can go weeks without it. I do eat seafood. Also put anti-inflammatory spices and herbs in my food. The worst thing for inflammation is sugar. I found that out when I had my birthday in January and ate pieces of very, sweet, rich cake. .I get fatigued each day (don't know whether that is because of illness or medicine) Sometimes I lie down for a couple of hours in the afternoon, others I just push through it. I am down to 3.5mg taking 2 in morning and the rest in evening. This low dosage, I do find some beginning cramps in a leg during night, but if I get up, take a some water, go back to bed it is gone. In the mornings I have some stiffness, but it gradually disappears. My past staggering around I really believe was due to Prednisone. It is such a nasty medicine, but a necessary one. I hope you get to feeling better and do try to have positive attitude. I set small goals for myself and celebrate, usually a glass of good wine, when I have achieved each one. A very hot shower in the morning with the spray concentrated on my lower back (osteoporosis) helps me. After working at it each morning, I can now touch my toes while in shower. This is such a long reply, hope something in it might be of help. Maggie 🙂