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Anyone dealing with Atypical Ductal Hyperplasia (ADH)?
Breast Cancer | Last Active: Sep 11 9:29pm | Replies (227)Comment receiving replies
Hello, new to this forum and diagnosis. Just recently, a MRI found a non-mass enhancement in my left breast. fast forward to MRI guided biopsy, my diagnosis is atypical ductal hyperplasia with PASH. My initial symptoms were breast pain and bloody nipple discharge only when i "expressed" it. I found the discharge because my nipple was very painful initially and currently remains painful. My question is do my symptoms match up with my diagnosis or could something still be missing? I have a surgical consult in a few weeks for next steps. Thank you!
Replies to "Hello, new to this forum and diagnosis. Just recently, a MRI found a non-mass enhancement in..."
Hi @sugardoll4, welcome to Connect. You'll notice that I moved your message to this existing discussion about atypical ductal hyperplasia (ADH). I did this so that you can meet other members like @elsajohnson @cindylb @elsie37 @sushilady1 @confused76 @khauff @amy11559 and more who are also talking about ADH, choices and what to expect. Click VIEW & REPLY to read through past messages.
You may also be interested in this discussion:
- High risk, NOT from BRCA but from typia, such as ALH, ADH, LCIS https://connect.mayoclinic.org/discussion/high-risk-not-from-brca-but-from-typia-such-as-alh-adh-lcis/
Sugardoll, did you talk to your oncologist or surgeon about your concerns that the symptoms you're experiencing (nipple discharge and pain) not matching the diagnosis?
Hello Sugardoll4 I am glad you found this board. So if I am reading correctly you have an upcoming appointment with a surgeon? They will discuss surgical excision of the area to make sure there is nothing else hiding as with a diagnoses of ADH there is a possibility of having cancer cells hiding so they will do a lumpectomy to confirm the diagnoses. I would definitely discuss the symptoms you are and were having with the doctor.
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@sugardoll4 Hi - In June 2018 during my annual mammogram screening the radiologist requested magnified views where he discovered micro-calcifications in my right breast that appeared to be vascular (linear) and scheduled a recheck for 6 months later. At the recheck in December 2018 (again w/ mag views) he could then see a cluster of micro-calcifications that presented differently than the vascular ones. I had a stereotactic biopsy and I received the diagnosis of atypical ductal hyperplasia. I had no symptoms or pain - all was discovered during routine screening. I continued on to have the surgical biopsy to rule out DCIS which was negative. I am now facing prophylactic medication because of my high risk category for developing breast cancer.
I understand that PASH is a benign condition. Does your doctor think that the pain and discharge is from the PASH? I am assuming your radiology report advises a surgical biopsy for the ADH - mine did. The surgical consult is the next logical step. When do you go for that?