Sorry you are dealing with both ADH and ALH. I was diagnosed with ADH in Feb of 2017. I have been doing mammograms and Breast MRI ulternating every 6 months for the last 5 years. I am 45, I have been doing Mammograms yearly before that since I was 30. I am high risk breast cancer as I have 3 relatives that have had it and I have extremely dense breast tissue and have gone through fertility. Anyway, even though I do checks every 6 months I found the lump myself in Dec of 2016 right before Christmas. I called my breast doctor and went in for an ultrasound. The Doctor could also feel the lump but nothing showed up on ultrasound. I was due for my breast MRI in Feb. so I was told we would wait for that unless I noticed the lump getting bigger. In Feb I had the MRI which showed the spot. Had a biopsy via-MRI which showed ADH and radial scar. I was referred to a breast surgeon and a lumpectomy was recommend as with ADH there can be cancer hiding with it. so I had the Lumpectomy on Feb 19. 2017 and everything came back clear. I did end up Mondors disease after the lumpectomy which was not fun, and because I also have had a completely hysterectomy with my ovaries out due to cysts and tumors on them also. I could not do tamoxifen. I was started on Arimadex to help lower my estrogen even more since ADH is driven by estrogen but I had so many awful side affects from it that I was only on it for a month and had to stop. My husband has the BRCA1 gene so I worry about my kids with that on his side and now me having this really puts my kids at risk. My daughter was told she should start getting mammograms at age 25 (she is 19 now and my oldest). Good luck to..

Doyoga, you are following the ADH discussion. Here's the link to read all the messages posted so far:
https://connect.mayoclinic.org/discussion/anyone-dealing-with-atypical-ductal-hyperplasia-adh/

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