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Anyone dealing with Atypical Ductal Hyperplasia (ADH)?

Breast Cancer | Last Active: Sep 11 9:29pm | Replies (227)

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@doyoga

I had Micro calcifications that had changed over 3 years. Stereotactic biopsy failed to locate them so I had a subsequent lumpectomy. The biopsy coincidentally found ALH. The lumpectomy showed the calcifications to be benign but the hyperplasia diffuse -as ALH AND ADH.
If fewer than 3 foci (‘locations, if u will) are found, I’m told my risk of breast cancer goes from around 11% in the general population to around 35%. More than 3 foci and we’re at 49%.
I do not have the BRCA gene. Am 51, lifelong vegetarian/vegan, yoga instructor/Ariel silks yoga and dance practitioner, slim, athletic, non smoker ....
I’ve elected to have a bilateral mastectomy with pre pectoral (above the muscle) dual phase reconstruction.

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Replies to "I had Micro calcifications that had changed over 3 years. Stereotactic biopsy failed to locate them..."

doyoga - Hugs and good wishes to you on the bi lateral mastectomies. I too found my breast cancer initially via microcalcifications (not a lump). ALH can present that way. Post mastectomy there will be a great deal of pathology done on the tissue that is helpful in planning for the future. My pathology showed a large number of bad situations 'in the making'. I am glad I chose to move forward with the mastectomies, it was a good choice for me.
I found the surgery pretty easy. I think the hardest part of it for me was the associated worry, not so much pain or the actual surgery side effects. Keep us all posted, we're all here for you.