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Anyone dealing with Atypical Ductal Hyperplasia (ADH)?

Breast Cancer | Last Active: 12 minutes ago | Replies (230)

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@cindylb

So sorry you're going through this. Five years ago I was diagnosed with ALH (lobular vs. ductal) and followed the same course of treatment you are going through now, so I think you're being treated with the standard protocol.....so that is good. The other 'good' news is that it sounds like you've caught your atypical cells early. During the surgery the area in question will be removed and pathology will analyze the tissue, which will give you a lot more information. Depending on the amount of tissue and those results, following the surgery, you really will have a pretty good picture of your situation. Then you will be monitored very closely to see if you get more atypical cells or cancer at some point. Hang on to the good news that you are getting this taken care of and also note.......there are a whole lot of us out here who have been through what you are going through and we're still here, fighting and going on about our lives. My ALH did become an invasive cancer 3 years ago BUT again, I was lucky.....it was Stage One at diagnosis and was highly treatable. That said it doesn't mean you won't be worried or sad about this, but you're doing all you can and you'll have a more complete diagnosis soon and a path forward. Waiting is the worst, information is power and we're all here for you. Hugs.

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Replies to "So sorry you're going through this. Five years ago I was diagnosed with ALH (lobular vs...."

First off thank you everyone for your posts as they really do help.. Cindylb question for you? You had ALH 5 years and 2 years after that you had invasive breast correct? Did they have you on any medication after the ADH such as tomoxafin or arimidex? I can't take tomoxafin because I had a blood clot after the lumpectomy so they won't put me on that and I had way to many side affects from the arimidex so I am not on anything. I have a couple woman in my family that have had breast cancer and my paternal grandmother died from it (granted when she had they didn't have as much technology or advanced chemotherapy as they do now). According to my doctor it is now if I get breast cancer it is when I get it. I do mammos/Breast MRIs alternating every 6 months. according the doctors I have very extreme dense breasts. My husbands side of the family all of BRCA1 jean so concerned about my daughter as with that on my husbands side and now me having this doctor said she needs to start having mammos at age 25. Thank you for your reply.