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Anyone dealing with Atypical Ductal Hyperplasia (ADH)?

Breast Cancer | Last Active: Sep 11 9:29pm | Replies (227)

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@camper1968

HI
I had my first mammogram 1/2/19. They found a spot and wanted to do a ultrasound, after the ultrasound they decided that I needed a core biopsy. Had that done 1/15/19. The results came back with Atypical ductal Hyperplasia (ADH). Now they want to do a surgical biopsy to check the surrounding area and remove ADH cells. I think I am understanding this all correctly. February 6 is the surgical biopsy. I haven't told my family, other than my husband. My cousin died last year with triple negative and my family will be so devastated if this is cancer. The waiting is the worst.

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Replies to "HI I had my first mammogram 1/2/19. They found a spot and wanted to do a..."

So sorry you're going through this. Five years ago I was diagnosed with ALH (lobular vs. ductal) and followed the same course of treatment you are going through now, so I think you're being treated with the standard protocol.....so that is good. The other 'good' news is that it sounds like you've caught your atypical cells early. During the surgery the area in question will be removed and pathology will analyze the tissue, which will give you a lot more information. Depending on the amount of tissue and those results, following the surgery, you really will have a pretty good picture of your situation. Then you will be monitored very closely to see if you get more atypical cells or cancer at some point. Hang on to the good news that you are getting this taken care of and also note.......there are a whole lot of us out here who have been through what you are going through and we're still here, fighting and going on about our lives. My ALH did become an invasive cancer 3 years ago BUT again, I was lucky.....it was Stage One at diagnosis and was highly treatable. That said it doesn't mean you won't be worried or sad about this, but you're doing all you can and you'll have a more complete diagnosis soon and a path forward. Waiting is the worst, information is power and we're all here for you. Hugs.

@camper1968 I am wondering how you are doing after your surgical biospy? I am having mine in 4 days and am wondering how your healing is going. xx