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Looking to connect with people who have non-diabetic neuropathy
Neuropathy | Last Active: Jul 14 1:33pm | Replies (960)Comment receiving replies
Jmj, thank you for your detailed reply. Im not opposed to taking meds, but always concerned about side effects and coming off them if need be. I’ve been on imipramine for many years along with some cymbalta . I have SFN diagnoses but also have a bunch of herniated discs. I have been told the discs are not causing this pain and SFN I am being told is the cause. I’ve had 4 major pains over my body that’s lasted over a year each prior. While my feet and hands are cold the major pains are actually in my arms and legs with a lot of buzzing/ internal tremors. Started to get some external tremors now and one of the drs wants me off the cymbalta to see if that’s causing the external tremors even though other doc says I’ve been on it so long that isn’t the cause. Sorry for rambling on. Either way the pain some days is so severe I will need to try something. Thank you again .
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@albeit.....Sorry if I sounded too negative about Lyrica. All any of us have are our own experiences, really. We can read until we are blind, but nothing written by another speaks for our own self. Each body is different.
So sorry to hear about the pain you are forced to endure. Pain is a funny thing. We all hate it, but we own it. It is very shared, yet very personal.
I was on cymbalta, lyrica, gabapentin, methotrexate, neurontin, prozac....all while searching for that magic remedy....to no avail. I've come to realize that for me there is no magic. I've had a large cerebellar stroke, resulting in many deficits plus constant migraines, trigeminal neuralgia, fibromyalgia (doesn't everyone?lol, very real, and becoming quite common ) thoracic outlet, aneurysm, blood clots, neuropathy in hands and feet, shoulder and back. Had about 18 surgeries, including aneurysm repair and both knees replaced. I am now 60 and the only surgery I will agree to is whatever is needed to save my life.
I am on pain meds, moderate dosage, with ten day breaks between scripts to reset my drug addled brain, lol. Having had injections, therapy of all types, used electric impulse gadget, vitamin therapies, diet makeovers, chiropractics....and the only thing that seems to allow me a bit of normalcy is narcotics, which is far from normal...go figure!. So, as with most who use them, I endure the pain shame game at the pharmacies, with each new doctor I am forced to see, and am very private about my use...except speaking in an anonymous venue, like this forum.
Chronic pain requires that we try and try again until we stumble upon something that works for us. So, as you can see, I'm not against drugs...just the ones that give me black eyes and confusion😭 I sure do hope my list of maladies hasn't bored you to tears. Just wanted you to know you're in...ummmm....good company? Yes! Good company. While you find your way to at least minimal comfort, this place is as good as any to blow off steam and bounce things off of.