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DiscussionLooking to connect with people who have non-diabetic neuropathy
Neuropathy | Last Active: Jul 14 1:33pm | Replies (960)Comment receiving replies
Replies to "I have non-diabetic, non-chemo p.n. I take gabapentin, sleep in socks, and experience severe pain, burning,..."
Hi,
Have you tried lyrica? I have painful short fiber, long fiber, motor and autonomic PN and took up to 3600 mg of gabapentin and then switch to lyrica and it worked tremendously better. Many people in my neuropathy group tried lyrica and hated it so I think it is an individual thing. It works great (relatively speaking - not getting rid of all pain) for my foot pain but does nothing for my hand pain.
Keep looking! There are lots of good suggestions here.
I use frankincense and myrh on my hubby legs and feet.
His is genetic.
Barely able to still walk.
He take1800 mg gabapentin a day
Hello @nancyella, Welcome to Mayo Clinic Connect. @artscaping shared 7 good tips from her experience that you might find helpful. Here is the link to her post earlier in this discussion - https://connect.mayoclinic.org/discussion/people-with-non-diadiabetic-neuropathy/?pg=3#comment-118230.
I have idiopathic small fiber peripheral neuropathy but I only have the numbness in me feet and ankles and do not have any pain with it. I've found some over the counter supplements that help some and I believed have helped slow or stopped the progression but it's subjective on my part. I shared what I use for treatment in a post earlier on Connect here - https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985
I'm hoping other members can also share some new ideas for you to try. Are your symptoms worse at night or during the day, or is it all the time?