i have non-diabetic peripheral neuropathy. the medication my doctor has prescribed is not helping, and i am almost to a maximum recommended dose. has anyone tried CBD oil or cream for pain? what other medications besides gabapentin (or lyrica, etc) have you tried? no NSAIDS help with the pain and i do not want to take narcotic/controlled substance pain relievers.
Hello all, I understand the frustration about "incurable" neuropathy. I have ND Polyneuropathy. It started 20 yrs ago has progressed into a looming presence, affecting @most of my body.
But today, I want to share a pain reliever that you can purchase at a health store w/o scrip. Totally legal. In all states ( check first)
It is CBD. Medical grade ( w/o the buzz) ,or Hemp from the marijuana plant. Cannibus. Many patients who use it daily have been cured of neuropathy. I have spoken to
Many of them. They are pain free, drug free & full of energy. No side effects. And it's affordable. The seed version is less expensive than the plant version due to extra processing.
I suggest you go to a reputable whole foods or health store & get details on what form suits you before making your selection. @Good Luck. Let me know the outcome. Elaine Dodd. ( It's a whole new world)
Hello all, I understand the frustration about "incurable" neuropathy. I have ND Polyneuropathy. It started 20 yrs ago has progressed into a looming presence, affecting @most of my body.
But today, I want to share a pain reliever that you can purchase at a health store w/o scrip. Totally legal. In all states ( check first)
It is CBD. Medical grade ( w/o the buzz) ,or Hemp from the marijuana plant. Cannibus. Many patients who use it daily have been cured of neuropathy. I have spoken to
Many of them. They are pain free, drug free & full of energy. No side effects. And it's affordable. The seed version is less expensive than the plant version due to extra processing.
I suggest you go to a reputable whole foods or health store & get details on what form suits you before making your selection. @Good Luck. Let me know the outcome. Elaine Dodd. ( It's a whole new world)
To Arcticmark referencing your heat sensitive & profuse sweating due to Neuropathy. If our home is over 60 d. I perish. Does anyone know a treatment for that? It's odorless sweat "ponds of water under my feet" is embarrassing thx Elaine Dodd
Hello all, I understand the frustration about "incurable" neuropathy. I have ND Polyneuropathy. It started 20 yrs ago has progressed into a looming presence, affecting @most of my body.
But today, I want to share a pain reliever that you can purchase at a health store w/o scrip. Totally legal. In all states ( check first)
It is CBD. Medical grade ( w/o the buzz) ,or Hemp from the marijuana plant. Cannibus. Many patients who use it daily have been cured of neuropathy. I have spoken to
Many of them. They are pain free, drug free & full of energy. No side effects. And it's affordable. The seed version is less expensive than the plant version due to extra processing.
I suggest you go to a reputable whole foods or health store & get details on what form suits you before making your selection. @Good Luck. Let me know the outcome. Elaine Dodd. ( It's a whole new world)
Thank you for those comments. I have tried the hemp version from 3 different suppliers (2 in drop form and one in pill form). Unfortunately, nothing worked. I would like to try the CBD from the marijuana plant itself. Would you suggest an online site where I might get a bottle to try. Many thanks.
Hi Mark,
I am in the process of diagnosis with Dr. Farhad at MGH for SFPN ( most likely autoimmune). My nerve biopsy is next week, as is an appointment with Dr. David SYstrom at BWH for SFPN from the ME/CFS pulmonary angle. I am on pain meds for what Dr. Farhad is pretty certain will be confirmed to be SFPN, as well as several issues with my spine. Very excited to hear about the pain clinic at Newton Wellesley! Is there is specific doctor there that you recommend?
Many thanks and best wishes to you as you continue to deal with this condition. 💫
To Arcticmark referencing your heat sensitive & profuse sweating due to Neuropathy. If our home is over 60 d. I perish. Does anyone know a treatment for that? It's odorless sweat "ponds of water under my feet" is embarrassing thx Elaine Dodd
Hi Mark,
I am in the process of diagnosis with Dr. Farhad at MGH for SFPN ( most likely autoimmune). My nerve biopsy is next week, as is an appointment with Dr. David SYstrom at BWH for SFPN from the ME/CFS pulmonary angle. I am on pain meds for what Dr. Farhad is pretty certain will be confirmed to be SFPN, as well as several issues with my spine. Very excited to hear about the pain clinic at Newton Wellesley! Is there is specific doctor there that you recommend?
Many thanks and best wishes to you as you continue to deal with this condition. 💫
i have non-diabetic peripheral neuropathy. the medication my doctor has prescribed is not helping, and i am almost to a maximum recommended dose. has anyone tried CBD oil or cream for pain? what other medications besides gabapentin (or lyrica, etc) have you tried? no NSAIDS help with the pain and i do not want to take narcotic/controlled substance pain relievers.
I have non-diabetic, non-chemo p.n. I take gabapentin, sleep in socks, and experience severe pain, burning, and tingling. I have found some relief from CBD cream but frankly find that Frankincense oil works equally well and is cheaper. I also use M.O.M.E.D. Neuropathy Release cream purchased along with Frankincense through Amazon. There are times when frankly nothing helps and I am hoping for new ideas.
I have non-diabetic, non-chemo p.n. I take gabapentin, sleep in socks, and experience severe pain, burning, and tingling. I have found some relief from CBD cream but frankly find that Frankincense oil works equally well and is cheaper. I also use M.O.M.E.D. Neuropathy Release cream purchased along with Frankincense through Amazon. There are times when frankly nothing helps and I am hoping for new ideas.
I have idiopathic small fiber peripheral neuropathy but I only have the numbness in me feet and ankles and do not have any pain with it. I've found some over the counter supplements that help some and I believed have helped slow or stopped the progression but it's subjective on my part. I shared what I use for treatment in a post earlier on Connect here - https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985
I'm hoping other members can also share some new ideas for you to try. Are your symptoms worse at night or during the day, or is it all the time?
I have non-diabetic, non-chemo p.n. I take gabapentin, sleep in socks, and experience severe pain, burning, and tingling. I have found some relief from CBD cream but frankly find that Frankincense oil works equally well and is cheaper. I also use M.O.M.E.D. Neuropathy Release cream purchased along with Frankincense through Amazon. There are times when frankly nothing helps and I am hoping for new ideas.
Have you tried lyrica? I have painful short fiber, long fiber, motor and autonomic PN and took up to 3600 mg of gabapentin and then switch to lyrica and it worked tremendously better. Many people in my neuropathy group tried lyrica and hated it so I think it is an individual thing. It works great (relatively speaking - not getting rid of all pain) for my foot pain but does nothing for my hand pain.
Keep looking! There are lots of good suggestions here.
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Neurologist are using the CBD in atlanta so am sure you can find one inyour area . Ga use is limited to prescription by a Dr.
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1 ReactionHello all, I understand the frustration about "incurable" neuropathy. I have ND Polyneuropathy. It started 20 yrs ago has progressed into a looming presence, affecting @most of my body.
But today, I want to share a pain reliever that you can purchase at a health store w/o scrip. Totally legal. In all states ( check first)
It is CBD. Medical grade ( w/o the buzz) ,or Hemp from the marijuana plant. Cannibus. Many patients who use it daily have been cured of neuropathy. I have spoken to
Many of them. They are pain free, drug free & full of energy. No side effects. And it's affordable. The seed version is less expensive than the plant version due to extra processing.
I suggest you go to a reputable whole foods or health store & get details on what form suits you before making your selection. @Good Luck. Let me know the outcome. Elaine Dodd. ( It's a whole new world)
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Like -
Helpful -
Hug
5 ReactionsTo Arcticmark referencing your heat sensitive & profuse sweating due to Neuropathy. If our home is over 60 d. I perish. Does anyone know a treatment for that? It's odorless sweat "ponds of water under my feet" is embarrassing thx Elaine Dodd
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2 ReactionsThank you for those comments. I have tried the hemp version from 3 different suppliers (2 in drop form and one in pill form). Unfortunately, nothing worked. I would like to try the CBD from the marijuana plant itself. Would you suggest an online site where I might get a bottle to try. Many thanks.
-
Like -
Helpful -
Hug
2 ReactionsHi Mark,
I am in the process of diagnosis with Dr. Farhad at MGH for SFPN ( most likely autoimmune). My nerve biopsy is next week, as is an appointment with Dr. David SYstrom at BWH for SFPN from the ME/CFS pulmonary angle. I am on pain meds for what Dr. Farhad is pretty certain will be confirmed to be SFPN, as well as several issues with my spine. Very excited to hear about the pain clinic at Newton Wellesley! Is there is specific doctor there that you recommend?
Many thanks and best wishes to you as you continue to deal with this condition. 💫
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1 ReactionI think that my doctor told me that there are drugs but so far I have just changed my shirts frequently. You should ask your doc.
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1 ReactionBoth the doctor and nurse practitioner are both fabulous. It is a small department so if you go in you will get the right people.
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2 ReactionsI have non-diabetic, non-chemo p.n. I take gabapentin, sleep in socks, and experience severe pain, burning, and tingling. I have found some relief from CBD cream but frankly find that Frankincense oil works equally well and is cheaper. I also use M.O.M.E.D. Neuropathy Release cream purchased along with Frankincense through Amazon. There are times when frankly nothing helps and I am hoping for new ideas.
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1 ReactionHello @nancyella, Welcome to Mayo Clinic Connect. @artscaping shared 7 good tips from her experience that you might find helpful. Here is the link to her post earlier in this discussion - https://connect.mayoclinic.org/discussion/people-with-non-diadiabetic-neuropathy/?pg=3#comment-118230.
I have idiopathic small fiber peripheral neuropathy but I only have the numbness in me feet and ankles and do not have any pain with it. I've found some over the counter supplements that help some and I believed have helped slow or stopped the progression but it's subjective on my part. I shared what I use for treatment in a post earlier on Connect here - https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985
I'm hoping other members can also share some new ideas for you to try. Are your symptoms worse at night or during the day, or is it all the time?
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2 ReactionsHi,
Have you tried lyrica? I have painful short fiber, long fiber, motor and autonomic PN and took up to 3600 mg of gabapentin and then switch to lyrica and it worked tremendously better. Many people in my neuropathy group tried lyrica and hated it so I think it is an individual thing. It works great (relatively speaking - not getting rid of all pain) for my foot pain but does nothing for my hand pain.
Keep looking! There are lots of good suggestions here.
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Hug
3 Reactions