Connect
← Return to Looking to connect with people who have non-diabetic neuropathy
Discussion
Looking to connect with people who have non-diabetic neuropathy
Neuropathy | Last Active: Jul 14 1:33pm | Replies (960)Comment receiving replies
@user* I've been thinking about no one being able to think of a dr who has been helpful to them - and - there must be so many kinds of PN, so many causes, there must be equally as many treatments, and to find the one that works for a particular individual might be like looking for the proverbial needle in haystack? or, perhaps as many have said - there is no treatment!!! You do have to be your own advocate - keep looking, trying new things, sharing what you have learned and what others have learned.
Replies to "@user* I've been thinking about no one being able to think of a dr who has..."
I think the majority of us with idiopathic PN are in the same boat. The pain may be different, the solutions vary, but trial and error seem to be what's on the Billboard. I must wear certain kinds of socks (all the time), rub CBD/THC cream on my feet morning and night. The pain has involved my hands just recently, so I will be forced to use cream on my hands as well. Looks like more "plastic gloves at home during the day....(since I wash my hands so, so often during the day.) What else can I do? Every idea is welcome. Thank you John B for all your valuable information!
Continue looking is a good thing, sometimes we lose hope but you got to keep looking, something that might give you a little relief could be in the next comment that you read.
Keep trying!
Connect
i have Idiopathic neuropathy and its in my head neck shoulders arms hand both my legs and feet even between my legs. In others words whole body. I had it for almost 3 years and its starting to get worst. taking pregabalin 300 daily along with duloxetine 30mg along with celecoxib 400mg daily. I am afraid it will take my eyes and hearing along with my limbs which leaves nothing left to work with except pain and pills. I am looking into stem cell therapy, prednisone or IVIG therapy. If anyone has had any success with the above mention treatments I would love to hear from you.