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DiscussionLooking to connect with people who have non-diabetic neuropathy
Neuropathy | Last Active: Aug 15 1:13pm | Replies (1207)Comment receiving replies
Replies to "Please keep us updated if finding a relief !! Good Look to you !!"
I can testify that, in the 3 states in which I lived, not one doctor could come up with ANY solution to ease my pain, although one in particular worked her heart out trying.
@user* I've been thinking about no one being able to think of a dr who has been helpful to them - and - there must be so many kinds of PN, so many causes, there must be equally as many treatments, and to find the one that works for a particular individual might be like looking for the proverbial needle in haystack? or, perhaps as many have said - there is no treatment!!! You do have to be your own advocate - keep looking, trying new things, sharing what you have learned and what others have learned.
@user_ch98d0b5c, I don't believe it's against the rules to name a doctor who has helped you in some way. I am thinking it's more along the line of what @barbarn is suggesting. There are so many types of PN and no one treatment works for everyone. That said if I found a doctor that "fixed" the numbness in my PN I would certainly give them the credit. I have found supplements that help but they do not cure PN and they may or may not work for everyone.
So I would just like to add, keep asking questions and sharing what you find if something works for you. We are all on this journey together.
John
My neurologist prescribed 20 mg. of nortriptyline. I have sensory neuropathy, i.e., burning of lower legs and feet. It has relieved my pain 95%. I am thrilled.
The doctor said "Fantastic!! When it works it works........
This is my first post. I have non diabetic neuropathy. But, I have yet to have my EMG and on my first appointment with neurology I was given Oxcarbazepine--apparently a anti seizure medication. After picking up the prescription and 20 minutes after taking it, the horrible, continuous nerve pain that I have had 24-7 was gone. I am to take Oxcarbazepine 150 mg twice a day. I still feel throbbing but it doesn't hurt. I can wear my Skechers for the first time in a month instead of my clunky crocs. The excruciating shooting toe pain is gone for now. I am cautiously optimistic. I had too many side effects after taking gabapentin, so I was given Cymbalta. But, I am already taking the depression medication Mirtazapine at night and do not want to take another prescription if not absolutely necessary. I was given the antibiotic Linezolid for a mycobacterium pulmonary lung disease and I took that oral medication for 4 months in addition to 3 other antibiotics for the same amount of time. Within 3 minutes after advising neurology APRN I had taken the Linezolid she told me that it was a side effect of Linezolid. My infectious disease doctor never mentioned neuropathy as a side effect. Also, I had a vitamin B-12 deficiency which cleared up after taking supplement for it. So, did the vitamin B-12 cause neuropathy or was it the Linezolid? Maybe both? I am 69 yrs old and still working as a house manager which includes strenuous house cleaning so without the Oxcarbazepine it was hell due to being on my feet for 8 hours a day. Another side effect of neuropathy was pain in my right total knee replacement. I never had ANY pain from TKR in the 3 years after surgery. I think I was having the pain because my gait has been off. I too had cold feet and had to wear my "winter" socks when it was 95 degrees outside. I had no idea what neuropathy was until my PCP suggested it during my yearly fitness exam over a month ago. I have a new-found sympathy for those fellow sufferers of neuropathy and it breaks my heart that I may have this disease for the rest of my life and the same for the folks who comment on this forum. May thoughts are with you all.
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I am shocked that no one can think of a dr who has been helpful to them. Is it against the rules?