← Return to Meds for cardiomyopathy – Ischemic/Non-Ischemic

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@nafoyo

Thank you for asking.I left out a lot about my story because I am not looking for empathy.I just want to know if anyone out there has been successfully treated by a Dr for cardiomyopathy they don’t know the underlying cause, The 2 cm benign tumor was taken out in Dec 2012. I recovered in two months and was racing but not before I had Iron infusion to correct for low level hemoglobin My low Hemoglobin was like a rollacoaster10-13,My hematologist said this was not of clinical concern.At that point I sought local cardiologists.I have seen 10 of them.The obvious tests I mentioned were run lncluding DNA analysis.For most they simply wanted to drug.Been to Mayo AZ and tested for sarcoidosis ALL negative.Normal metabolics and CBC.I am a Gymn rat just can’t run. I cried many times when this first happened but I have now gotten over, I refuse to believe that a country that can send a man to the moon can not solve a heart problem.There is a sharp Dr out there that is not a puppet of GDMT that is going to crack my case.In the meantime I am hoping to hear some successes story.I live in Pa

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Replies to "Thank you for asking.I left out a lot about my story because I am not looking..."

@nafoyo I'm glad that you provided a bit more information. While I understand your wanting answers and a treatment plan, some diagnoses take time. I have had health problems that also took a lot of visits to specialists and a lot of persistence in looking for answers. I know how frustrating it can be, but keep looking for answers. I hope that another member of Connect might be able to offer you some suggestions.

What is your most difficult symptom right now, @nafoyo?