← Return to Meds for cardiomyopathy – Ischemic/Non-Ischemic

Discussion

Meds for cardiomyopathy – Ischemic/Non-Ischemic

Heart & Blood Health | Last Active: May 25, 2020 | Replies (57)
Comment receiving replies
@hopeful33250

Hello @nafoyo,

I have just been reading your posts about your heart problems. I noticed that these changes in your heart function came after surgery to remove a tumor in your stomach. If you care to share more about this: how long ago was the surgery? Were the changes in your heart functioning soon after that?

As this heart disorder has caused some very major changes in how you feel as well as in your lifestyle, I'm wondering if you have been seen at a major heart clinic. You do not mention where you live, however, I would encourage you to seek a heart specialty center. There are many in the U.S. including Mayo Clinic, Cleveland Clinic, etc.

Have you considered a second opinion?

Jump to this post

Replies to "Hello @nafoyo, I have just been reading your posts about your heart problems. I noticed that..."
nafoyo | @nafoyo | May 24, 2020

Thank you for asking.I left out a lot about my story because I am not looking for empathy.I just want to know if anyone out there has been successfully treated by a Dr for cardiomyopathy they don’t know the underlying cause, The 2 cm benign tumor was taken out in Dec 2012. I recovered in two months and was racing but not before I had Iron infusion to correct for low level hemoglobin My low Hemoglobin was like a rollacoaster10-13,My hematologist said this was not of clinical concern.At that point I sought local cardiologists.I have seen 10 of them.The obvious tests I mentioned were run lncluding DNA analysis.For most they simply wanted to drug.Been to Mayo AZ and tested for sarcoidosis ALL negative.Normal metabolics and CBC.I am a Gymn rat just can’t run. I cried many times when this first happened but I have now gotten over, I refuse to believe that a country that can send a man to the moon can not solve a heart problem.There is a sharp Dr out there that is not a puppet of GDMT that is going to crack my case.In the meantime I am hoping to hear some successes story.I live in Pa

VIEW AND REPLY