Connect
← Return to Meds for cardiomyopathy – Ischemic/Non-Ischemic
Discussion
Meds for cardiomyopathy – Ischemic/Non-Ischemic
Heart & Blood Health | Last Active: May 25, 2020 | Replies (57)Comment receiving replies
Hi folks I am a 50yr old woman diagnosed last year with dilated cardiomyopathy. At my most recent cardio appt last week the Dr was very pleased with my progress but I am not healed up yet. Two things: my family is fully freaked out by my diagnosis and not able to be supportive. So I am looking for support and support groups because i know loneliness/lack of support is bad for you. Also, even tho the doc says im getting better I still feel crappy mostly from side effects of my meds (carvedilol, entresto and spirolactinone). My blood pressure is normally low and with the meds is even lower. Yesterday, I tried to do a mile walk, which in the past was totally easy for me, but this time I got a pain in my jaw which spread to me head which I have never had before so now Im scared. Tests earlier this year show I have no disease in my arteries so the cardiomyopathy is probably an inherited condition. I am otherwise healthy. I would love some support and any thoughts which may be helpful.
Replies to "Hi folks I am a 50yr old woman diagnosed last year with dilated cardiomyopathy. At my..."
@tahoetaylor All of us sit in a pile of dog poop some time. I don't have what you have (I think) but if you are looking for something to read, my story is at httjps://bit.Ly/1w7j4j8 'Amyloid and Old Karl' . You might find something to laugh about, I suppose. Anyway, hang in there, and keep pushing back at the medicos.
Connect
HEY! You say "your not healed up yet:" So your pleased doc is saying you ARE getting better! Sounds encouraging to me! Some folks are a lot worse off than us. I just went thru a "why bother" couple of bad days when told a week after airtic valve replacement, that was going well, I have to begin taking blood thinners due to my new A-fib bouts that are occurring pretty much 75% of the time now. I so enjoy my beer! And all this crap appears to mean no more. Very depressing to see my "health" going to hell in a hand basket in just days.
So I try to learn more and more about all this stuff everyday - that helps. I too came here and posted and have received some wonderful replies of support - so I am glad you came! Hope you get other's stories that help you feel better about your own situation, as well as some good info you may not have thought of yet.
Good luck! Your doc is encouraged, hope you can be soon too!