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Body itching

Autoimmune Diseases | Last Active: Nov 11, 2023 | Replies (165)

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@gardeningjunkie

I wish you the best and must admit I understand how you feel about getting a diagnosis with a name, at least now we have a name for our tormenter and can start thoroughly researching it. Also we understand why we get our symptoms. Yet what will frustrate you is that even with our best attention this chronic disease will return, it's just the way it is. The torso cells have lost the collagen that holds them together. You'll have to seek sympathy here form us. Like you make every effort to not burden others with my health, it truly is boring for others to listen to, nothing they can do and I don't want to drive them away.
Wish Vanicream soap worked for rme, it should, because it doesn't have my allergens in the soap ingredients but still my skin feels itchy when I use it. Bring a bar of Grandma's Lye Soap for face and body, sold on Amazon into your derms office next time. Just 2 safe ingredients, Lye and Lard and as mentioned the Lye is converted into glycerin in the soap making process. Google the Vanicream unscented cleansing bar, over 12 ingredients. Also Vanicream is twice the price. I keep a bar of Grandma's at each house sink and one in my purse. Price still not a big issue, but remember Vanicream sends reps out, provides free samples and solicites dermatologist, buys the entire office lunch and gives them freebies and this is expensive. Not saying it's a bad product, but just learn to read ingredients yourself and make a decision. Expensive isn't always better. I've been using Grandma's for 3 1/2 years now and just recently Mayo added it to their new Skin Safe product line. I was surprised when soap came with this info on the new labels. I love it as shampoo too. Yet not enough money in this for those good looking, well dressed reps who come wheeling in their product samples to take up our doctors time to send out reps for Grandma's.
If you are getting rashes on other parts of your body, forgive me for asking again, but have you had the 5 Day Extended Patch Test? I have 3 forms of eczema and each is unique with different triggers and treatments or avoidances. Your scalp itch may be Allergic Contact Dermatitis, ACD, this was my greatest tormentor I spent my sleepless nights planning the best way to kill myself while laying in bed suffering, but no more because of test results in which I learned what contact I must avoid for the rest of my life. Those of us with eczema often have multiple forms of eczema.

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Replies to "I wish you the best and must admit I understand how you feel about getting a..."

I just noticed new packaging on Grandma's Soap has also change the name. Instead of Grandma's Pure Soap, Lye Soap for Face and Body, the new package has dropped the Lye in the title. Now reads Grandma's Pure Soap for Face and Body. Exact same ingredients. Perhaps Mayo told them having the name of Lye in the title scared folks.

@gardeningjunkie ...I have not had the 5 day patch test. My previous derm at mayo, now retired , discussed it with me...but he always felt something more, or other was going on. So we never did it. He also told me a little story about seeing something from a distance and not quite able to make it out until we get closer. I believe that's my story. For now, I'll jump on the remedies, and all we can do is watch my blood tests.
I looked up Grandma's soap...I may try it. Just ordered 6 bars of Vanicream. Nothing seems to make a difference as far as topicals ..I dont feel irritated, but I understand I need to apply a more gentle approach to protect my diseased skin...so I'm doing what doc said.
Honestly, I could have taken my razor and gladly shave off this rash if I could...pain and blood would have been the lesser of the evils. But let's not look back, and try our best to think positive thoughts and keep searching and trying new products and lifestyles to offer relief to this misery. If you ever have those bad thoughts during your uncomfortable nights, talk to anyone that'll listen, and come here. Sorry to hear you had those thoughts.
Remember the symptoms go away at some point in time, so try to stay focused on the things you love. You sound active, like me...I love my garden. I have lots of Rose's, love being outside and at the beach here in Florida. I own 2 horses as well. I do have to limit what I do, as you have mentioned...not happy about that. But I always look forward to when I'm well knowing I'm going jump right back in. Keep us posted on what you research...and your personal tips I'm finding you most helpful!
Thank you, Linda