Comment receiving replies
Replies to "I wish you the best and must admit I understand how you feel about getting a..."
@gardeningjunkie ...I have not had the 5 day patch test. My previous derm at mayo, now retired , discussed it with me...but he always felt something more, or other was going on. So we never did it. He also told me a little story about seeing something from a distance and not quite able to make it out until we get closer. I believe that's my story. For now, I'll jump on the remedies, and all we can do is watch my blood tests.
I looked up Grandma's soap...I may try it. Just ordered 6 bars of Vanicream. Nothing seems to make a difference as far as topicals ..I dont feel irritated, but I understand I need to apply a more gentle approach to protect my diseased skin...so I'm doing what doc said.
Honestly, I could have taken my razor and gladly shave off this rash if I could...pain and blood would have been the lesser of the evils. But let's not look back, and try our best to think positive thoughts and keep searching and trying new products and lifestyles to offer relief to this misery. If you ever have those bad thoughts during your uncomfortable nights, talk to anyone that'll listen, and come here. Sorry to hear you had those thoughts.
Remember the symptoms go away at some point in time, so try to stay focused on the things you love. You sound active, like me...I love my garden. I have lots of Rose's, love being outside and at the beach here in Florida. I own 2 horses as well. I do have to limit what I do, as you have mentioned...not happy about that. But I always look forward to when I'm well knowing I'm going jump right back in. Keep us posted on what you research...and your personal tips I'm finding you most helpful!
Thank you, Linda
I just noticed new packaging on Grandma's Soap has also change the name. Instead of Grandma's Pure Soap, Lye Soap for Face and Body, the new package has dropped the Lye in the title. Now reads Grandma's Pure Soap for Face and Body. Exact same ingredients. Perhaps Mayo told them having the name of Lye in the title scared folks.