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Replies to "Hi @basslakeview, While doing a bit of research online about Morgellons disease, I came across this..."
Autoimmune Diseases | Last Active: Nov 11, 2023 | Replies (165)
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Replies to "Hi @basslakeview, While doing a bit of research online about Morgellons disease, I came across this..."
Kanaaz, I apologize for misspelling your name earlier. My spellcheck did that. I didn't notice until it was sent.
Kansas, thank you for the link. I'll check it out. Out of the 12 doctors I've seen only two did a test, only for what they could see with the "naked eye". They took a plug from my scalp where I had lost hair, and they both came back with alopecia. This was early stages of the disease. Since then, no other doctor has done any tests. They tell me I have a psychosis for parasites. To a person suffering, to me, I felt it was a slap in the face, but I just thank them, pay my hard earned money and go to another one. I have taken pictures of my scalp (which is full of lesions), and other parts of my body now after 2+ years and since March have been putting samples of things that have come from my body in separate Ziploc bags. Only one doctor would look at one photo. The rest "don't have time for that."
I am in touch with someone I met on the internet who has written a book and he's trying to help. He has helped a lot of others so I'm encouraged.