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@poodledoc. I am super dismayed that your lab tests did not include a suseptibility test! Your dr is taking a stab in the dark and randomly throwing antibiotics at you. That is just wrong! It should not a 'One Size Fits All' treatment plan. Some species (now over 150 varieties) of mac are resistant to various antibiotics. @joann, this is good for you to know as well. I would INSIST on a suseptibilty test and insist on you having a hard copy of that and the sputem results in your hands. It is good to keep a file of those lab tests. You would be surprised how they come in handy for future reference.
Replies to "@Poodledoc. I am super dismayed that your lab tests did not include a suseptibility test! Your..."
My healthcare providers have an online patient portal so I have access to all of my lab tests and other information regarding each visit.
I will request a susceptibility test How is this test performed?
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Terri , I was not happy about the way my case was handled by my Pulmonologist. The best thing he did for me was a referral to Dr Fiske , an ID doctor at Vanderbilt. I just saw her her Thursday and was very impressed with her knowledge of MAC/Bronchiectasis. I gave another sputum sample for culture AND susceptibility testing. She routinely sends all her cultures to National Jewish Health. (this also impressed me). She also started me back on Azithromycin and Ethambutol daily along with the Arikayce I have been taking. So now the long wait to get results back from the lab. So if anyone reading this is wondering whether or not to get an ID doc, wonder no more, he/she will be much more likely to be up to date on MAC/Bronchiectasis.