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Hello Terri, Speaking of susceptibility tests. I was first diagnosed with MAC in Sept 2019 from a bronchoscopy culture performed at the same hospital. I was surprised that a susceptibility test was not done, but I started the big 3 anyway. This past May another culture (sputum sample) was sent to Quest laboratories and I insisted that susceptibility testing be done at the same time and my Dr said he would order that. 8 weeks later my culture is still positive for MAC and M. abscessus as well, but the susceptibility test was never done. He then started me on Arikayce. I am seeing an Infectious disease doctor in 2 days and I want to get another culture sent to NJH this time to include a susceptibility test. I checked the NJH website and they have a total of 11 different varieties of susceptibility tests for NTMs.
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@poodledoc. I am super dismayed that your lab tests did not include a suseptibility test! Your dr is taking a stab in the dark and randomly throwing antibiotics at you. That is just wrong! It should not a 'One Size Fits All' treatment plan. Some species (now over 150 varieties) of mac are resistant to various antibiotics. @joann, this is good for you to know as well. I would INSIST on a suseptibilty test and insist on you having a hard copy of that and the sputem results in your hands. It is good to keep a file of those lab tests. You would be surprised how they come in handy for future reference.