@alleycatkate and @poodledoc I have not seen Dr. Johnson yet, but will be seeing her for the first time in June. I am looking forward to seeing her and hearing what her ideas are about treating mac. Even though I have been testing negative for several years now: I still like to pick brains! Poodledoc, I cannot say enough good things about the Mayo Clinic. Besides saving my lungs from needing a transplant; I really admire how organized medical testing and visits go. Tests, exams, results, dr consult, and treatment, all done in the same day, usually. Mayo hires the cream of the crop in medical teams. Vanderbilt may run a similar operation. I have found that medical universities and other medical research institutes are generally better than private practice doctors.

Hi everyone! It’s been a while since I got on here. I do read daily about all the reports. I have seen Dr Johnson and I think she’s great! I saw her last July and I felt pretty good the way she explained some of the issues we go through. I am seeing in March and I’m hoping to have positive results again. I have been tested negative for Mac and pseudomonas!! I feel great not much fatigue and I eat a lot more now. I have gained 10 pounds!!! Before that I was not gaining any weight..I am struggling with much RA pains and constantly need to take prednisone! But I am handling it and I would take RA any day instead of Mac and pseudomonas 😊 I go out more and get to see my kids and grandkids more and I’m happy I am also being very careful and wearing my masks and doing what I need to do. I hope I’ll have good news again after my doctors visit. Everyone stay safe and be blessed Rita.”