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Bronchiectasis: New Diagnosis

MAC & Bronchiectasis | Last Active: Apr 15, 2023 | Replies (382)
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@brigby

@noahs My ID doc checks my immune system periodically,
and I’m always have a couple things outside normal range. How exactly did they diagnose your rare autoimmune disorder?

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Replies to "@noahs My ID doc checks my immune system periodically, and I’m always have a couple things..."
noahs | @noahs | Apr 2, 2019

Hi. They checked my autoimmune thru blood tests... forgot what they were ... but one was ANA. I was immediately referred to a rheumatologist who confirmed that I am autoimmune and placed me on steroids and immunosuppressant drugs. Now he is trying to find the right balance for me so I can
Get off totally or a much lower dose of steroids yet prevent an autoimmune flare up. Oh btw, in Jan 2018 they found my immune system low so they thought that was causing my frequent lung
Infections. So I was given monthly intramuscular immunoglobulin shots. My condition worsened . So that’s when I was
Hospitalized for 17 days . And diagnosed autoimmune attacking the lungs. You can google it ... I googled ad nauseaeum. Autoimmune attacking the lungs.

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