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← Return to Bronchiectasis: New Diagnosis
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@brigby
I too had mycobacterium Abcessus....but by the grace of God it is gone without antibiotics. To my understanding its a fast growing one which is treated more aggressivly with maybe Iv's at first and longer treatment.
I had really bad sinus problems then upon a sinus scan we decided surgery was needed. Not sure if this is an option for you if you have an active infection with myco Abcessus in the sinus cavity sinus surgery may not be an option.
But the surgery was the best thing ever I don't have sinus problems anymore. The sinus canal was made larger to help with any drainage. My sinus area was completely blocked off before surgery. I could not smell anything for years prior. Now I can smell things again.
Be careful of the water you use in the sinus area to my understanding even distilled water can have mac. Hope this info helps and you and your Drs find a successful course of action.
Shari
Replies to "@brigby I too had mycobacterium Abcessus....but by the grace of God it is gone without antibiotics...."
@pfists how long ago were you diagnosed with m. Abscessus, and how long have you tested negative?
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@pfists hi there thanks so much for your encouraging message. I’ve had three sinus surgeries, and I was scheduled for a 4th this past January, but my sinuses improved, due to the Navage, I think, So my ENT was thrilled and amazed to be able to postpone it for now.
I’m enrolled in a couple of clinical trials with the ENT at Stanford, where they are trying to figure out more about the normal vs. abnormal sinus biome.
Glad to hear you are obsessed is free! I pray for you it will be permanent! Stay in touch.