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Bronchiectasis: New Diagnosis

MAC & Bronchiectasis | Last Active: Apr 15, 2023 | Replies (382)

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@brigby

Thanks again for your concern and quick response. I’m not familiar with what a “spacer” is?

I currently use a nebulizer daily and recently increased the saline from 3% to 7%. I had handfuls of brown sputum when diagnosed, now I have to work very hard, with vest, postural drainage and huff cough simultaneously to get even little bits of sputum out. I have thoracic pain all the time, and intermittent chest pain, but only in small, specific spots. No night sweats, chills, or those blasted muscle aches since my most recent lung infection (HIB) in January.

I add both the Budesonide and the Gentamicin to distilled H2O in my Navage. After years of using Neti pot, and WaterPik with a rubber tip, I feel the Navage delivers the meds better than anything. You kind of get a little mini sinus endoscopy with each treatment!

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Replies to "Thanks again for your concern and quick response. I’m not familiar with what a “spacer” is?..."

@brigby- So you don't use an inhaler and a nebulizer? I get it. Has your doctor mentioned a reason for your frequent infections? I am so sorry that you have to work so hard to keep healthy. Vacation is just around the corner, hopefully it will be a good one for you. I'm hoping that @janov, @danielad, will join this conversation.

@brigby, For now, you should avoid gardening and yard work altogether. You would not believe the things you can pick up in the way of molds and pathogenic bacterias from plants, leaves, and soil. Also, avoid swimming in anything. No pools, no hot tubs, rivers or lakes. It sounds like you are having immunodeficient issues. Stay out of old houses that may have mold and especially hospitals. I don't mean to scare you, but a red flag goes up when I read that you have multiple infectious things.