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Bronchiectasis: New Diagnosis

MAC & Bronchiectasis | Last Active: Apr 15, 2023 | Replies (382)

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@merpreb

@brigby - I'm so glad that you are still able to work. It sounds as if you have things pretty much figured out, except the question that you originally asked. Have you asked your doctor why things have progressed so rapidly? Are others on here seeing the same changes?
Your navage is for irrigation. Wouldn't an spacer allow a more deeper inhale? I find that when I don't use my spacer I don't get as much meds into my lungs. There's a difference in both apparatus as far as usage goes. Do you inhale the inhalant through your nose? You might be contaminating your self?

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Replies to "@brigby - I'm so glad that you are still able to work. It sounds as if..."

Thanks again for your concern and quick response. I’m not familiar with what a “spacer” is?

I currently use a nebulizer daily and recently increased the saline from 3% to 7%. I had handfuls of brown sputum when diagnosed, now I have to work very hard, with vest, postural drainage and huff cough simultaneously to get even little bits of sputum out. I have thoracic pain all the time, and intermittent chest pain, but only in small, specific spots. No night sweats, chills, or those blasted muscle aches since my most recent lung infection (HIB) in January.

I add both the Budesonide and the Gentamicin to distilled H2O in my Navage. After years of using Neti pot, and WaterPik with a rubber tip, I feel the Navage delivers the meds better than anything. You kind of get a little mini sinus endoscopy with each treatment!