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Bronchiectasis: New Diagnosis

MAC & Bronchiectasis | Last Active: Apr 15, 2023 | Replies (382)

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@brigby

@merpreb Hi there, thanks for your response! I’m a Biology teacher so that plus what I pick up from scholarly articles give me a baseline understanding of bacteria and fungi contraction and growth.

To provide you some scale, I could barely walk across the room when diagnosed in 2016. Yesterday, I was able to walk and even jog a little for 30 minutes. I used to love exercise, now most of the time I hate it because it is such an effort, but I keep pushing as I know it is helping my lungs! By God’s grace, I’m still able to work full-time, since I’m only 57. I live in Fresno, California and the climate here is arid. We have some of the worst air quality in the world, so I do my sinus & lung hygiene each day. I also have CRS, and mycobacterium abscesses colonized in my sinuses, an extreme rarity evidently.

My current symptoms are fatigue, temp spike in the p.m., A little bit of yellow sputum each day, very little cough, No Hemoptysis, but dyspnea is increasing. I’m on a budesonide nasal rinse, Bid, and Gentamicin, also taken as an inhalant through my Navage

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Replies to "@merpreb Hi there, thanks for your response! I’m a Biology teacher so that plus what I..."

@brigby Hi. I was in the same shape as you back in 2013. I couldn't walk from one room to the next without sitting down to catch my breath. For yrs I couldn't go to a mall, except to one store only. Even that would wipe me out. Today, I can walk all I want, and rode my bike two days ago 8 miles! After being sick for so many yrs, I never thought I would improve to the point that I have. I actually improved my 6 min walk at my last dr visit. My dr was astounded. Never give up fighting to better your health, it is possible to improve.