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Bronchiectasis: New Diagnosis

MAC & Bronchiectasis | Last Active: Apr 15, 2023 | Replies (382)

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@kpost2

I have been diagnosed with Bronchiectasis from my Pulmonologist. I had a couple Bronchoscopies done.
I wear a shaker vest 2 times a day. I also get an Asthma shot every four weeks. I also get I.V. treatments
for my Bronchiectasis every four weeks also. Been doing this for about two years now and still have a continued
cough with mucus. I feel like a lab rat when ever I go to the doctors office. Also have been on lots and lots of Antibiotics.
Is there any other thing I can try?

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Replies to "I have been diagnosed with Bronchiectasis from my Pulmonologist. I had a couple Bronchoscopies done. I..."

Hi @kpost2, welcome to Connect. You'll notice that I have moved your message to an existing discussion about bronchiectasis in the MAC & Bronchiectasis group. If you click VIEW & REPLY in the email notification, you can scroll back through the past and recent posts.

I also invite you to explore all the discussions in the group. There is a wealth of information here: https://connect.mayoclinic.org/group/mac-bronchiectasis/tab/discussions/

For example, this discussion:
- Long-term Antibiotics for Bronchiectasis & MAC https://connect.mayoclinic.org/discussion/bronchiectasis-mac-antibiotics/
- Are Nebulized saline and Aerobika beneficial? https://connect.mayoclinic.org/discussion/are-nebulized-saline-and-aerobika-beneficial/

One thing you'll quickly notice is that you're not alone. I'd like to introduce to a few members like @windwalker @tdrell @irene5 @kjellis and others who understand your feeling like a lab rat and searching for treatment/management options in support of or as an alternate to long-term antibiotics.

KPost, do you use a nebulizer?

@kpost2
Welcome to the group.
I too am getting the nucala asthma shot...do you feel like the injection your getting is helping with reducing phlehm production?
I am also prescribed the Vest to help with phlehm that does help some.
Are you looking into allergies that would cause more phlehm like dairy dust mold in the house. Just a some things I have to be watchful of.
Hope you get some answers to reducing the phlegm production.
Shari

What kind of I.V. Treatments do you get? I have Bronchiectasis also, plus Mac and I’m on the 3 oral meds plus nebulizer and vest. This is my second go round as I was originally diagnosed at NJ in 03.

@kpost Hello and welcome to our group. I am curious as to why you are on I.V. treatments for bronchiectasis? Do you have a severe mac or pseodomonas infection? Or is the damage from bronchiectasis in a severe stage? Are you nebulizing saline? I hope you don't mind my questions, I am just trying to get a better idea of your health & treatment situation. I had a constant cough with terrible phlegm production for 10 yrs. In 2016 I was put on inhaled tobramycin and that cleared it all up. I am on the tobramycin every other month to this day and still doing good.

If you are able, add some postural drainage.