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← Return to Bronchiectasis: New Diagnosis
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MAC & Bronchiectasis | Last Active: Apr 15, 2023 | Replies (382)
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auntnanny, thanks for the information, I just feel so lost not knowing what is going on. It sure does help to read the posts. I'm still in denial and thinking this is just another cold setting in. I hope the tests get scheduled soon so I can move on and find out something. I have tried all summer to build up my strength by trying to work in my garden. It's gotten worse as the summer goes on and now the garden is done. I'm down to using a walking stick to walk outside because I feel so unsteady when I'm walking. Time will tell I guess. Thanks for your information. I know something is wrong I'm just not sure what.
Replies to "auntnanny, thanks for the information, I just feel so lost not knowing what is going on...."
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@jweisser @auntnanny I so agree with Auntnanny about Mayo! I have been mentally tortured since diagnosis (6 mo's ago) as I was told nothing..NOTHING about the disease, by my pulmonologist, other than I had it. So I finally got to Mayo this past week and the Dr. smiled at me and said "so you filled in the blanks". It is indeed scary when you do not know what is happening to your body and how to react and treat it. Do yourself a Huge favor and see someone you can trust at either Mayo or maybe New Jewish Health. I feel as though I have my life back now. Mine are mild cases of MAC and Bronchiectasis but I feel confident on how to proceed. These people are professionals that will get to the bottom of your issues and help you with the best treatment plan. Will your insurance plan cover Mayo and can you get there? They work as a team there instead of picking a specialist here and there as was Aunt Nanny's experience....and then winding up questioning who to believe and who's opinion to follow. Just my thought on it as I hate to see you continue along with such uncertainty. Kate