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Bronchiectasis: New Diagnosis

MAC & Bronchiectasis | Last Active: Apr 15, 2023 | Replies (382)

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@windwalker

@jweisser Hi there. I am glad that you are seeing a pulmonolgist soon. If your dr. doesn't offer a CT Scan or sputem test; be sure to ask for those two things. The CT Scan is the best test for bronchiectasis. It will show the actual structures inside the lungs. That way, your pulmonolgist can see what is going on in your lungs. The sputem test is to see if mac or pseudomonas is growing in your lungs. These two infections are commonly found in people with bronchiectasis. They cause the coughing and fatigue. If you don't have them now, you may in the future, so you want to get regular sputem tests. I have had mac/bronchiectasis since 2005. I did not begin to lose a lot of weight until 2016. That was due to a pseudomonas infection. I went from 143 lbs to 116 lbs in 8 months. Since treatment in 2016; my weight is coming back. My point is, you may not be losing weight now, but you may in the future. It is one of the warning signs of an active infection. I hope you will take the time to read from the Discussion Board. It is on this group's home page and has a list of helpful topics. I hope you get to feeling better soon.

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Replies to "@jweisser Hi there. I am glad that you are seeing a pulmonolgist soon. If your dr...."

Terri, In order to get a sputum test I assume you have to be coughing up some of the phlegm. Right now I'm not coughing up anything. I do a lot of hacking in the morning trying to clear out my throat, but it never totally comes up, just far enough to swallow. How is a sputum test done, I assume you have to be able to get something coughed up to test. Monday is the breathing test if we can get there. They are predicting 6" of snow in this area and we have to drive an hour to the hospital.

Is anyone going to Mayo in Scottsdale, AZ?