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Bronchiectasis: New Diagnosis

MAC & Bronchiectasis | Last Active: Apr 15, 2023 | Replies (382)

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@auntnanny

@jweisser Thank you for posting. I was diagnosed at Mayo's Rochester three years ago. I was terribly ill before the diagnosis and had eventually lost a lot of weight. Had been to 7 different specialists and none came up with the problem. Mayo's found it in a couple of hours. Your note caught my eye because I, too, had never heard of bronchiectasis and apparently that showed on my face when they told me. So, they went on to say "You do not have cancer -- you have bronchiectasis. It is not curable but we can manage it". And.... they have. I wasn't aware of ultra sound being used to diagnose it. That was news to me (but of course, I don't know much). I hope you have a doctor with good knowledge of this disease and if so, I believe you will soon be feeling much better. Do post again so we'll know how you are doing and many of the patients on this site are extremely helpful. They have had great experience and will surely help you through this.

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Replies to "@jweisser Thank you for posting. I was diagnosed at Mayo's Rochester three years ago. I was..."

auntnanny, I'm still reluctant to accept this quick diagnosis, I will wait for the two pulmonary test later in the week. I don't know how this is usually diagnosed but I should have more info later. As yet I don't have a pulmonologist, this is all through my PA, who is very good and working through all the tests. I'm thinking this might be from chemo and radiation treatment. My throat always feel full like pressure and into my head. I just feel there is something else. However years ago I was also exposed to asbestos, because my husband worked in the plumbing business for our Veterans Hospital. He ground asbestos covering from pipes in a hammer mill, mixed it with water and put it back on the pipes to insulate. He came home with this asbestos dust on his clothes and I did the laundry. He has asbestosis and I keep worrying about that. But this was 45 years ago before they knew it was dangerous. I will know more after my next two tests. Thanks