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← Return to Bronchiectasis: New Diagnosis
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@auntnanny I am on the same regimen as @america. The tobramycin knocked it out of me in 2016. I have been on the tobramycin every other month since then. I have 'known' you for awhile now; a year or more. I have seen you text that you are on antibiotics for a week or two feel better, then off for several months, then sick again, then on antibiotics for a week or two.....short runs om antibiotics don't seem to be working for you. Like me, you may need to be on them for an indefinite time. A few weeks here and there is not enough to beat it down.
Replies to "@auntnanny I am on the same regimen as @america. The tobramycin knocked it out of me..."
I am 52 yrs old with an autoimmune disease and recently been diagnosed with bronchiectasis and pseudomonas. I was on 3 rounds of oral antibiotics. Then my pulmonologist put me on gentomyacin in the nebulizer with albuterol first. Advair twice a day and prescription Flonase twice a day. Along with mucinex twice daily. I used the gentomycin twice daily for 28 days then prednisone for a week following. I felt slightly better but not 100%. My chest is tight my upper back hurts, when I lay on my side I feel like my lungs are being crushed. I was recently tested for CF and have one gene but doc says don’t worry you don’t have CF. I’m extremely tired and don’t feel well all the time. In March I started working from home due to COVID and my doctor suggested it was a good idea and recently told I can go back into the office. I feel like I can’t make it through the day as I’m extremely tired.
Questions
Is it normal to feel like you can’t work a full day? I was normally working 10 hrs a day and now feeling like I can’t make it to 6 hours.
Has anyone had to take a leave of absence?
Has anyone had good results from gentomycin? I ask because I sent a new sputum culture in as I think the pseudo is not gone.
Does the pain in your chest when breathing ever go away?
Does anyone else have upper back issues due to the lung issues?
Do you ever not feel so tired?
How long does it take to rid your body of pseudo?
My apologies for so many questions but I am new to this and need answers. My dr says you can’t get rid of the bronchiectasis but learn to manage it. I’m not feeling managed or normal.
Any feedback is greatly appreciated.
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@windwalker Terri, I am have major reflux since I’m using Toby! And I’m wondering if you have that problem too. Is there something that’s on the natural side I can you? Thanks Rita