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navylady (@navylady)

Bronchiectasis: New Diagnosis

MAC & Bronchiectasis | Last Active: Dec 17, 2020 | Replies (364)

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@navylady

Thanks for your reply. And thanks for bringing up medical records. I don't have copies of mine or any test results, but I know what medical center has them, and I think it's time to pursue this. Just giving me something that I can do –helps.

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Replies to "Thanks for your reply. And thanks for bringing up medical records. I don't have copies of..."

Thanks for the reminder. I started, decades back, keeping written records of health care. Now I know why. I take my own records and compare them to the notes from Mayo, NIH, Univ of Helsinki, ARUP and others. Then, if I am not satisfied with the diagnosis given by one of the labs, I know exactly why, and what I can do, even if the diag is all screwed up. Example: I was diagnosed by a local clinic with chronic bronchiectasis a decade ago, and the doc said I just had an over-reaction to a med. Mayo says differently, and I know now what I really have, or at least I know that my disease is not just an "over-reaction". It is a deadly disease, one of several I have had and fought with for my entire life. And when I do die, at least I will have the satisfaction of knowing what it is, even if the local docs are afraid of it.

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