I would suggest you call Mayo Clinic in Florida. I had somewhat similar experiences here in SE Kansas and finally after a few years of getting absolutely nowhere, I made a call to Mayo's and they took me within 2 days. You don't need a referral. And..... when you tell them your problem, they will be setting you up with a group of pulmonologists. I hope you do this. It will relieve your mind and your symptoms. They can't cure it, but they can help you manage it. I went three years ago and am convinced I would not be alive today had I not done that. (I went to Rochester -- which was a 10-hour drive -- but was the closest for me)