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Rare cancer: ovarian clear cell carcinoma

Gynecologic Cancers | Last Active: Sep 5 5:36pm | Replies (125)

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@heather2020

Thank you, Odette. I am stage 3C. I haven't looked into a second opinion, mostly because I already like my oncologist quiet a bit. If I were to get a second opinion it would be on the pathology report, but I assume that's not possible since I doubt they kept my tumor samples at the hospital. My doctor mentioned that the folks doing the pathology were some of the best in the area. He also took my case to a "tumor board" with local oncologists to discuss it, since I present so differently. It's just confusing that I don't have typical symptoms/history for OCCC. Treatment for uterine and ovarian cancer with CCC is similar. The only difference, since they are not 100% sure of its origin, is that I will get some radiation therapy after chemo is complete. That's typical for uterine cancer. I will look at the sites you recommended, thank you! Do these sites report on the studies from Asia as well?

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Replies to "Thank you, Odette. I am stage 3C. I haven't looked into a second opinion, mostly because..."

The NCCN provides the standards/recommendations for cancer treatment in the U.S. I follow the evidence based research with references, including some from outside the U.S. I consult the pubmed.ncbi.nlm.nih.gov for recent research. You will quickly become adept at finding the latest research.

Hi @heather2020, I'd like to add my welcome. It sounds like your oncologist and oncology team is being very thorough. With respect to getting a second opinion on the pathology report, I might recommend looking into that. It is possible that your tumor samples are kept for a period of time. It's worth asking.

How often are you getting chemo?