Hello Heather. I'm so sorry that you have gone through this experience, but I'm glad you found us. We are a small group because OCCC is rare as you mentioned. I have no expertise in this matter, just personal experience and the extensive research I have done. I have never encountered anyone with bilateral CCOC. Most women have/ had endometriosis with an endometrioma being the origin of the lesion. I believe that there is a clear cell uterine cancer which is an endometrial cancer, but I don't really know anything about it. Did you receive a second opinion? What stage are you?
Taxol/carbo is the typical regimen given and everyone responds differently. I found exercise, meditation, yoga helpful during this process. Healthy nutrition.
In terms of research, much of it comes out of Asia, particularly Japan as CCOC is far more prevalent in that population. I would recommend the NCCN (USA), ESMO (Europe), Canada in addition.
There is a group of women on INSPIRE with CCOC that are very supportive. I'm on several sites myself. The Mayo Clinic is an outstanding medical institution and I always follow their research as well.
Sorry I can't provide you with any additional information, but do feel free to write any time.