I have heard of NETs, but I don't know anything about it. I'm sorry you've now been diagnosed with clear cell. As you know, it is rare although there are women on several online forum with this diagnosis. I would suggest you join Inspire that has a group specifically for CCOC. Most women you will meet with OC have HGSOC which is a completely different disease. Since March, I have found that people don't seem as engaged with these online groups probably because COVID is dominating our thoughts. For women in active treatment, it must be very challenging at this time. There are women on Inspire who are undergoing treatment now who may be able to provide you with valuable information. Have you had surgery, staging, treatment??? Stay in touch.

Jump to this post