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Rare cancer: ovarian clear cell carcinoma

Gynecologic Cancers | Last Active: Sep 5 5:36pm | Replies (125)

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@odette

I would suggest you look at the NCCN (National Comprehensive Cancer Network) guidelines for ovarian cancer. There is a patient guidelines booklet online. These are the standards for treatment used at all of the cancer centers in the U.S. While OCCC research shows resistance to platinum-based chemo, it is relative. Until you know your staging, you will not know how to proceed. Have you been provided with this information? Unless you are stage 1A and observation is an option, chemo will be recommended. Everyone responds differently. If chemo is recommended for you, your team will prepare you in advance. Hair loss is typical, but some women are now using cold caps which may or may not be covered by insurance. The effectiveness varies.
Glad to hear from you. I've been thinking about you.

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Replies to "I would suggest you look at the NCCN (National Comprehensive Cancer Network) guidelines for ovarian cancer...."

Hi Odette,
Thank you so much for this information. I will take a look at the NCCN and join Inspire. I am getting my staging surgery June 16th. My mass was discovered during a routine laparoscopy to remove fibroids/cysts, so I have to wait three weeks to get my second surgery. The surgeon told me it looked like it was confined to my left ovary and hopefully stage 1, but she is not an oncologist, so I won't know my actual stage until the 16th. I have heard about the cold caps and also heard their effectiveness varies. Thank you so much for all of this info. You are a wealth of knowledge. Have a lovely weekend. 🙂