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DiscussionRare cancer: ovarian clear cell carcinoma
Gynecologic Cancers | Last Active: Sep 5 5:36pm | Replies (125)Comment receiving replies
Replies to "Hello Stacy, I am also Stacie and thank you for sharing your story. May I ask..."
Hello Stacie, I'm sorry that you have recently been diagnosed with OCCC. My surgery and all subsequent treatment has been done at Mayo. Dr. Javier Magrina performed my hysterectomy/debulking via laparoscopic robotic surgery. After surgery, Dr. Kristina Butler, also a gynecologic oncologist, then took over my care for IP port placement, chemotherapy and subsequent followup. I continue to be in remission and monitored by Dr. Butler and now by her PA. I feel so fortunate to have the opportunity to have these talented doctors on my side. We are now seeing more clinical trials that include clear cell which I think is promising.. at the time I was diagnosed (2017) there were very few. I second Odette's recommendation of Inspire as there is a wealth of clear cell information there. Like you, I started to lose weight initially. I met with a nutritionist at Mayo, who recommended following a mediterranean diet. I was able to increase my protein intake during treatment to keep my weight consistent through treatment. I am more than happy to share any additional information if you have questions. Sending best wishes, Stacy