I did not realize that you would need surgery again. I assumed that you had optimal debulking with your initial surgical procedure.What is this next operation? If you've not had the tumor removed, they will probably recommend an abdominal hysterectomy (so as to avoid rupture of the ovary) which I believe is typically done with a vertical incision. My incision healed quickly and is barely visible, but I know everyone responds differently (scar tissue, etc). I was postmenopausal at the time of my diagnosis so there was no endometriosis present other than the endometrioma/OCCC.
Getting a second opinion is essential and I admit that I have more confidence in the institutions that have a reputation for performing gynecologic oncology surgery regularly. I grew up going to the Mayo Clinic as well as working there so I have a great deal of respect for their care which is why I obtained a second opinion from them. Dana Farber, MSK, and MD Anderson are in the same league. Unfortunately, not everyone can access these medical facilities, but having an experienced gynecologic oncology surgeon is ultimately what is most important. OCCC is rare and really a very different disease than HGSOC which is the most common. It is often confined to the ovary and is associated with endometriosis. What was your CA-125?
I also consult ESMO research regularly as I mentioned previously. Their approach to early stage OCCC has been different than that of the United States until recently. But I do think that the research coming out of Asia is cutting edge because of the prevalence of OCCC.
I have lived in France many times and was hoping to go there this summer. Not happening now.